The Australian Motor Neurone Disease Registry was launched by Professor Matthew Kiernan on Motor Neurone Disease Global Awareness Day, 21 June 2005, at the Annual Conference for Health and Community Care Providers.
The Australian Motor Neurone Disease Registry is a clinical database that provides a means to facilitate the collection and analysis of Motor Neurone Disease patient data such as demographics, site of onset, diagnosis data, treatment type, changes in functional capacity, complications related to disease progression and the impact of new treatments and interventions for Motor Neurone Disease. The goals of the registry are to improve patient care through continuous evaluation of patient management and associated outcomes and to form significant scientific research collaborations with organisations and individuals to further the understanding of Motor Neurone Disease.
Visit www.amndr.org for more information.
