SAFE-PD

RESEARCH STUDY

A randomised controlled trial to reduce the risk of falling in people with Parkinson’s disease

STEPPING TO AVOID FALLS EVENTS IN PARKINSON’S DISEASE

Researchers at Neuroscience Research Australia (NeuRA) and The University of New South Wales are seeking research volunteers to help us learn about reactive and volitional step training to reduce falls among people with Parkinson’s disease.

Would the research project be a good fit for me?

The study might be a good fit for you if:

  • Have been diagnosed with Parkinson’s disease (mild to moderate stage of the disease)
  • Aged 40 years or older
  • Living independently in the community or retirement village
  • Able to communicate in English language
  • Do not have a diagnosis of other neurological and/or cognitive impairments, atypical Parkinsonism
  • No recent history (< 6months) of deep-brain stimulation surgery
  • Able to walk 30 metres unassisted
  • Have had less than 20 falls in the past three months
  • Being stable on anti-Parkinson medications for >= 1 month

EXPRESSION OF INTEREST

What would happen if I took part in the research project?

If you decide to take part you would:

  • Be invited to visit NeuRA to assess your physical functions, clinical status, reactive stepping and brain functioning (non-invasively) (option to have some of the assessments conducted in your home); these assessments will be repeated after 3 months and you will receive summary results of these assessments
  • Be randomly allocated to one of two groups: one group will undertake 3 months of training, including a volitional step training program in your home plus 2 sessions of reactive step training at NeuRA. The other group will continue with their usual activities for 3 months.

Will I be paid to take part in the research project?

You may be reimbursed for any reasonable travel costs associated with the research project visit/s.

Contact

If you would like more information or are interested in being part of the study please contact

Contact person: Paulo Pelicioni
email: p.pelicioni@neura.edu.au
Phone: 02 9399 1024

HREC Approval Number: 180129

Volitional step training at home

Reactive step training at NeuRA

 

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FEEL THE BUZZ IN THE AIR? US TOO.

During three decades on Australian television, two simple words brought us to attention.

‘Hello daaaahling’. Outrageous, flamboyant, iconic – Jeanne Little captivated Australians everywhere with her unique style, cockatoo shrill voice and fashion sense. "Mum wasn't just the life of the party, she was the party.” Katie Little, Jeanne’s daughter remembers. This icon of Australian television brought a smile into Australian homes. Tragically, today Jeanne can't walk, talk or feed herself. She doesn't recognise anyone, with a random sound or laugh the only glimpse of who she truly is. Jeanne Little has Alzheimer's disease. The 1,000 Brains Study NeuRA is very excited to announce the 1,000 Brains Study, a ground-breaking research project to identify the elements in our brains that cause life-changing neurodegenerative diseases like Alzheimer’s, Parkinson’s and other dementias. This study will focus on the key unresolved question: why do some of us develop devastating neurodegenerative diseases, while others retain good brain health? The study will compare the genomes of people who have reached old age with healthy brains against the genomes of those who have died from neurodegenerative diseases, with post mortem examination of brain tissue taking place at NeuRA’s Sydney Brain Bank. More information on the study can be found here. Will you please support dementia research and the 1,000 Brains Study and help drive the future of genetics research in Australia? https://youtu.be/q7fTZIisgAY
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