SAFE-PD

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A randomised controlled trial to reduce the risk of falling in people with Parkinson’s disease

STEPPING TO AVOID FALLS EVENTS IN PARKINSON’S DISEASE

Researchers at Neuroscience Research Australia (NeuRA) and The University of New South Wales are seeking research volunteers to help us learn about reactive and volitional step training to reduce falls among people with Parkinson’s disease.

Would the research project be a good fit for me?

The study might be a good fit for you if:

  • Have been diagnosed with Parkinson’s disease (mild to moderate stage of the disease)
  • Aged 40 years or older
  • Living independently in the community or retirement village
  • Able to communicate in English language
  • Do not have a diagnosis of other neurological and/or cognitive impairments, atypical Parkinsonism
  • No recent history (< 6months) of deep-brain stimulation surgery
  • Able to walk 30 metres unassisted
  • Have had less than 20 falls in the past three months
  • Being stable on anti-Parkinson medications for >= 1 month

EXPRESSION OF INTEREST

What would happen if I took part in the research project?

If you decide to take part you would:

  • Be invited to visit NeuRA to assess your physical functions, clinical status, reactive stepping and brain functioning (non-invasively) (option to have some of the assessments conducted in your home); these assessments will be repeated after 3 months and you will receive summary results of these assessments
  • Be randomly allocated to one of two groups: one group will undertake 3 months of training, including a volitional step training program in your home plus 2 sessions of reactive step training at NeuRA. The other group will continue with their usual activities for 3 months.

Will I be paid to take part in the research project?

You may be reimbursed for any reasonable travel costs associated with the research project visit/s.

Contact

If you would like more information or are interested in being part of the study please contact

Contact person: Paulo Pelicioni
email: p.pelicioni@neura.edu.au
Phone: 02 9399 1024

HREC Approval Number: 180129

Volitional step training at home

Reactive step training at NeuRA

 

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Injury is the leading cause of death and hospitalization among Australian children.  Nationally, infants <12 months have the highest rates of death due to injury among all children and an injury hospitalisation rate of 799/100,000 population.  Falls represent the leading cause of injury hospitalisations, accounting for almost 50% of hospitalised injury in this age group and an emergency department presentation rate of 3500/100,000. Most falls among these children are from short heights (<1m), and occur in the child’s home. Around 80% of infants <12months admitted to hospital after a fall have sustained a head injury, with approximately 1/3 sustaining traumatic brain injury (TBI). Despite the widespread nature of this problem and the potential for lifelong impact, recent compilation of evidence for effective child injury prevention interventions show there is no evidence, worldwide, for any effective countermeasures. Moreover, there are currently no formal, targeted measures in place to prevent falls in infants <12 months in Australia. There is a global need to identify effective ways to reduce the burden associated with falls among this population. As a solution, we are developing a digital intervention as a mobile app based on behaviour theory, targeting knowledge, behaviour and home environment of new parents in the first 12 months of a child’s life.
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