NeuRA Magazine #19

Volunteer opportunities

HOW YOU CAN CONTRIBUTE TO RESEARCH

A participant assists in falls and balance research

As a research participant at NeuRA, you will play a critical role in helping us advance the treatment and understanding of many diseases and conditions. By donating your time, you will help us provide excellence in the care of others.

Research groups currently looking for participants:

James McAuley Group
Back pain
The purpose is to investigate the mechanisms underlying the development and persistence of chronic low back pain. We hope to explain why some people get better after hurting their back while others do not. We are looking for healthy volunteers who do not have low back pain within the last two years as the control group. The participation in this study will involve three sessions of approximately 2 hours. The sessions will occur at baseline and again 3 and 6 months later.

Stephen Lord Group
Step training
We are looking at training a participants’ ability to respond to slips and trips while walking. The participant will experience perturbation (either a slip or trip) while walking along our walkway. They will be in a harness to prevent injury.

Lynne Bilston Group
Breathing and Obstructive Sleep Apnoea
We aim to understand how the function of the upper airway muscles, sensation in the airway, and the brain all control breathing muscles and how these things contribute to obstructive sleep apnoea. We hope this will lead to personalised treatments of sleep apnoea in the future. This study requires two overnight visits in the sleep laboratory and an MRI appointment. Participants may be compensated up to $220.

Jane Butler Group
Breathing and chronic obstructive pulmonary disease
People with chronic obstructive pulmonary disease (COPD) have difficulty performing simple physical tasks such as walking from one room to the next. These tasks require effort and causes breathlessness (comparable to a normal person performing strenuous exercise). We perform electroencephalography (EEG) in our study to determine if a cortical contribution is present during quiet breathing in people with COPD. We would like to recruit participants of similar age (+-2 years), BMI and same gender as our COPD participants.

Stephen Lord Group
Understanding upper limb function in the young and old
Motor impairments are common and occur in many diseases and disorders, and also with ageing. We aim to understand motor impairments and to devise strategies to reduce their deleterious effects. To do this, an approach of ‘physiological profiling’ for lower limb performance has been used by Professor Lord and colleagues to reduce the risk of falls. We will undertake a similar approach to measure performance of the upper limb using simple inexpensive tests that can ultimately be widely used in research and clinical practice.

Janet Taylor Group
Does learning about pain change the influence of exercise in people with chronic pain?
The purpose of this research project is to better understand how exercise affects pain in people with chronic pain. We are looking for volunteers with fibromyalgia or osteoarthritis of the hip or knee to take part in an experiment investigating the effect of exercise and pain education on pain thresholds. Volunteers would be required to visit the laboratory on one occasion for approximately 90 minutes. During this visit, participants would be asked to complete a short series of questionnaires, perform 20 min of low-moderate intensity aerobic exercise, and have their pain threshold measured before and after this exercise. The assessment of pain thresholds is non-invasive and produces only the minimum perceivable amount of pain. Participants will be offered $30 for their time.

If you would like to register or find out more, call 02 9399 1071 or email volunteers@neura.edu.au. You can also volunteer as a healthy research participant.

See what’s going on at NeuRA

FEEL THE BUZZ IN THE AIR? US TOO.

During three decades on Australian television, two simple words brought us to attention.

‘Hello daaaahling’. Outrageous, flamboyant, iconic – Jeanne Little captivated Australians everywhere with her unique style, cockatoo shrill voice and fashion sense. "Mum wasn't just the life of the party, she was the party.” Katie Little, Jeanne’s daughter remembers. This icon of Australian television brought a smile into Australian homes. Tragically, today Jeanne can't walk, talk or feed herself. She doesn't recognise anyone, with a random sound or laugh the only glimpse of who she truly is. Jeanne Little has Alzheimer's disease. The 1,000 Brains Study NeuRA is very excited to announce the 1,000 Brains Study, a ground-breaking research project to identify the elements in our brains that cause life-changing neurodegenerative diseases like Alzheimer’s, Parkinson’s and other dementias. This study will focus on the key unresolved question: why do some of us develop devastating neurodegenerative diseases, while others retain good brain health? The study will compare the genomes of people who have reached old age with healthy brains against the genomes of those who have died from neurodegenerative diseases, with post mortem examination of brain tissue taking place at NeuRA’s Sydney Brain Bank. More information on the study can be found here. Will you please support dementia research and the 1,000 Brains Study and help drive the future of genetics research in Australia? https://youtu.be/q7fTZIisgAY
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