Keith and Lucille had never considered how medical research could benefit from the donation of a brain until their world came crashing down. After noticing changes
in her husband, it was revealed that Keith was living with frontotemporal dementia. About one year later, he was also diagnosed with Parkinson’s disease. They desperately wanted to help future generations, and decided together that the best way to do that was through brain donation. They knew their precious gift would not only be of tremendous value to researchers now, but that it would create a legacy of discovery for years to come. After Keith’s passing and subsequent donation, an examination of his brain revealed that he was in fact not living with Parkinson’s disease, but had lived with both frontotemporal dementia and the early stages of Alzheimer’s disease. These types of findings are crucial in helping researchers and clinicians better diagnose and treat a wide range of brain diseases and is an key part of the reason why Lucille and Keith thought it important to bequest their brains to science at the Sydney Brain Bank.
The 2019 Federal Budget has delivered a win for people living with brain disorders in Australia, with a $7million funding boost for research aimed at developing improved models of care. The clinical and research translation program, led by the Mindgardens Neuroscience Network (Mindgardens), will build new models of care to address the staggering burden of brain disorders in Australia. The disease burden associated […]