Younger woman has arm around older woman

Caregiver Burden

It is well known that dementia causes distress, especially for family members closely involved with a patient. In FTD, however, little research has been done to understand caregiver stress. By investigating caregiver distress, and combining it with the information we have from the patients, we are able to understand which aspects of the condition are creating more distress for their families. This enables professionals to give better advice and support for caregivers and families affected by FTD, and also to work on the prevention and alleviation of stress whenever possible.