Dementia – Experiences of family care givers

An Online Survey Exploring Protective Factors Against Stigma

What is this research about?

This online survey, led by Professor Kaarin Anstey, is aiming to help us better understand the experiences of family care givers of people with dementia. In particular, this research is looking into the impact of negative attitudes or disbeliefs – so called stigma.

Stigma can not only negatively impact the person with dementia directly, but also their family members, leading to significant negative impacts on health and well-being. Aiming to reduce the negative impact of stigma on family caregivers, this survey is exploring which factors can act as buffer against stigma.

The outcome of this study will help inform future interventions about these important protective factors against stigma and contribute to promote health and well-being for family caregivers of people with dementia.

What does participation involve?

The online survey is anonymous and will take approximately 30-35 minutes to complete. The survey will ask you questions about yourself (e.g. age, sex, and education), your caregiver role and experiences associated with it, your attitudes towards ageing and dementia knowledge, your emotions and reactions to challenges, and your social relationships.

Who can participate?

You are eligible to complete the online survey if you are:

  • Over the age of 18
  • Currently caring for a family member with a formal diagnosis of dementia
  • Have access to internet to complete the survey

If you would like to hear more about the study or receive the link to the online survey, please fill out the form below or contact us directly on stigma@neura.edu.au or 02 9399 1116.