Click on the links below to read more on your chosen topic:
Challenging Behaviours: Tips for the Carer
Practical Advice For Everyday Activities
Community Resources and Support
Planning for the future
The caring role and the family
Carer Support Groups
Reading and DVD list for carers
Websites for carers
The Australian Frontotemporal Dementia Association
A diagnosis of frontotemporal dementia (FTD) may initiate a number of questions and concerns for people with the diagnosis and their family and friends. There are many people available to assist you to find information (regarding the disease and practical issues) and adjust to the diagnosis.
FTD presents in two ways (a behavioural variant and a language variant). Therefore symptoms vary for different people. We have provided some practical hints regarding some of these symptoms on these links: behavioural symptoms and practical problems in everyday life. Remember that we are all individuals and these suggestions are general. If you need more assistance please contact one of the associations close to you.
We think that meeting with other carers can also be very helpful. There is a specific FTD carer’s group in Sydney, coordinated by carers, which holds regular meetings. The date of the next meeting can be found here.
It is important for you to look after yourself if you are a carer and to have the support you need to do this. This will help you to provide the best care for the person with FTD as well as maintaining your physical and psychological health.
Frontier, in association with Alzheimer’s Australia has produced a booklet on Younger Onset Dementia , which you can download from the link below. The Alzheimer’s Australia website also has a subsection on Younger Onset Dementia with helpful information.
The Eastern Cognitive Disorders Clinic in Melbourne has also developed a valuable resource for carers and patients, The FTD Toolkit (link below), which provides detailed information on FTD, diagnosis, management and resources.
NSW Safely Home Program (PDF)
NeuRA is coordinating the Sydney site for the DIAN (Dominantly Inherited Alzheimer Network). This study sets out to look for biological changes that occur in people before they develop the Alzheimer’s symptoms such as memory loss. Over the last two years, NeuRA has been working on a clinical trial program aimed at preventing the symptoms of Alzheimer’s by removing amyloid […]