Portrait of Prof Olivier Piguet

Carer Support Page


Community resources and support

Alzheimer’s Australia is a wonderful resource and support organisation, providing services and information to people affecting by all types of dementia. Their website www.fightdementia.org.au is well worth exploring. A few of their valuable programs and resources are detailed below:

Alzheimer’s Australia have a Younger Onset Dementia Key Worker program, which was established in 2013 to meet the unique needs of those aged under 65 and their families. There are 40 Key Workers across the country, whose role is to act as a primary point of contact for people with younger onset dementia, their families and carers. They can provide information, support, counselling advice and assist with identifying and engaging appropriate services as required. To make a referral to this program, call the National Dementia Helpline on 1800 100 500. For more information on the program, including eligibility criteria click here.

Alzheimer’s Australia’s have introduced a daily online news page: Dementia Daily which is a great way of keeping up to date with research and news.
From July 2013 the My Aged Care (www.myagedcare.gov.au) federal government website has been up and running, having replaced the Seniors and Aged Care Australia websites. My Aged Care has clear information on services, eligibility, assessment and specific information for carers. My Aged Care can also be accessed by telephone on 1800 200 422.

See what’s going on at NeuRA


'I've got the best job for you dad. Your shaky arm will be perfect for it!'

Children… honest and insightful. Their innocence warms the heart. But what words do you use to explain to a child that daddy has an incurable brain disease? What words tell them that in time he may not be able to play football in the park, let alone feed himself? What words help them understand that in the later stages, dementia may also strike? Aged just 36, this was the reality that faced Steve Hartley. Parkinson's disease didn't care he was a fit, healthy, a young dad and devoted husband. It also didn't seem to care his family had no history of it. The key to defeating Parkinson's disease is early intervention, and thanks to a global research team, led by NeuRA, we're pleased to announce that early intervention may be possible. Your support, alongside national and international foundations Shake it Up Australia and the Michael J Fox Foundation, researchers have discovered that a special protein, found in people with a family history of the disease increases prior to Parkinson’s symptoms developing. This is an incredible step forward, because it means that drug therapies, aimed at blocking the increase in the protein, can be administered much earlier – even before symptoms strike. The next step is to understand when to give the drug therapies and which people will most benefit from it. But we need your help. A gift today will support vital research and in time help medical professionals around the world treat Parkinson’s disease sooner, with much better health outcomes. Thank you, in advance, for your support.