Portrait of Prof Olivier Piguet

Carer Support Page

CLINIC INFORMATION

Websites for carers

This page lists relevant websites which give more information on FTD and carer services.

(Please be aware that some of the websites are overseas (US, UK) and therefore some of the services described might differ from Australia)
Frontotemporal Dementia:
The Australian Fronto-temporal Dementia Association (AFTDA)
Association for Frontotemporal Dementias (US) (click here for newsletters)
FTD Support Group (UK)
Frontotemporal Dementia by Alzheimer’s Society UK (UK)
Personal blog on living with bvFTD
Frontotemporal Dementia Caregiver Support (US)
Speakability – Aphasia Charity (UK)
Australian Aphasia Association
PCA (Posterior Cortical Atrophy) support network in Australia
Dementia Associations:
Younger Onset Dementia: Alzheimer’s Australia
Health Services – New South Wales Government

Websites by Carers:
FTD support forum (worldwide FTD carer forum)
International PPA (Primary Progessive Aphasia) Connection (IMPPACT)
Dementia Journeys (Forum, blog, daily compilation of internet and social media Dementia resources)
Constantly Trying (Personal blog by carer of person with FTD)
Carers’ Associations and Information:
Information for Caregivers – Alzheimer’s Australia
Caring for someone – Australian Government
Carers’ Allowance – Centrelink
Carers’ Australia
Carers’ New South Wales
Guardianship Tribunal – New South Wales

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