Portrait of Prof Olivier Piguet



Carer support groups

Carer and Family Information Day Meeting – organised by FRONTIER

Our next FTD Carer Support and Information Day will be held from 11am-4pm on Friday June 10th 2016, here at Neuroscience Research Australia in Barker Street, Randwick. See program here
FTD Carer Support Group (organised by carers)

The FTD Carers Support Group meetings are held on the 1st Wednesday of the month at 5.30pm at the Brighton Le Sands RSL. Every third month they are held at a venue in Randwick. Everyone is most welcome to go along.

The next meeting is on: June 1 at Brighton
Please email Debra Laws (ariesdeb@tpg.com.au) for time and venue details.

The Brighton Le Sands meetings are from 5:30pm for dinner at the RSL from 6:00pm. The RSL is on Bay Street just around the corner from Grand Parade, with extensive parking at the rear.

For those who cannot make the distance feel free email Debra and ask for feedback from the meetings. Also contact Debra if you would like to receive an email giving details of forthcoming meetings.

Below is the schedule for the upcoming meetings for 2016:

  • May 4 Brighton
  • June 1 Brighton
  • July 6 Randwick
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'I've got the best job for you dad. Your shaky arm will be perfect for it!'

Children… honest and insightful. Their innocence warms the heart. But what words do you use to explain to a child that daddy has an incurable brain disease? What words tell them that in time he may not be able to play football in the park, let alone feed himself? What words help them understand that in the later stages, dementia may also strike? Aged just 36, this was the reality that faced Steve Hartley. Parkinson's disease didn't care he was a fit, healthy, a young dad and devoted husband. It also didn't seem to care his family had no history of it. The key to defeating Parkinson's disease is early intervention, and thanks to a global research team, led by NeuRA, we're pleased to announce that early intervention may be possible. Your support, alongside national and international foundations Shake it Up Australia and the Michael J Fox Foundation, researchers have discovered that a special protein, found in people with a family history of the disease increases prior to Parkinson’s symptoms developing. This is an incredible step forward, because it means that drug therapies, aimed at blocking the increase in the protein, can be administered much earlier – even before symptoms strike. The next step is to understand when to give the drug therapies and which people will most benefit from it. But we need your help. A gift today will support vital research and in time help medical professionals around the world treat Parkinson’s disease sooner, with much better health outcomes. Thank you, in advance, for your support.